Looking for Adventure?
Photo courtesy of 9Lives Adventures
When one hears about a friend or acquaintance going skydiving, bungee jumping, racing, white water rafting, etc., the news is usually followed by one of two reactions: “That sounds amazing. I would LOVE to do something like that” or “Wow that is terrifying. I could NEVER do something like that.” So which person are you?
For people with disabilities, hearing about someone partake in one of the adventures above, might invoke a different reaction: “I didn’t know I COULD do that.”
There are so many wonderful stories about adrenaline adventures involving people with disabilities. You may remember the young woman who went bungee jumping in her wheelchair in British Columbia last year. According to CBS News, Christi Rougoor loved racing her dirt bike and after a motocross accident left her in a wheelchair, she was searching “for that rush to replace what I have lost.” While the reasoning may not be the same for all, most people who choose these types of adventures, are indeed looking for a rush.
Recently Kyle Maynard made the news. Kyle is a 25-year-old congenital amputee with a mission to climb Mount Kilimanjaro. Kyle was born without arms or legs, but for him that was never a barrier. The expedition aims to “demonstrate to young people with disabilities that no obstacle is too great to be conquered with an active, no-barriers lifestyle and mindset,” says the Mission Kilimanjaro website. Despite all of his accomplishments and adventures, climbing to the 19,341 ft. summit of Mt.Kilimanjaro will be Kyle’s toughest test yet.
And then there is motocross racer Ashley Fiolek, who has brought a lot of attention to the sport as a deaf athlete. Ashley explains that being deaf can be both positive and negative in this sport. Because she cannot hear when racers are on her tail, she does not feel the same pressure as other racers. However, she has to be very careful to hold her lines when racing since she cannot hear other riders passing.
Pretty cool individuals. Maybe you’re reading this article and saying “okay, I’m ready, sign me up.” If so, let us introduce you to the company that has made many adrenaline adventures possible: Canadian-based 9Lives Adventures. The founders, Karim Ladki and Matt Thola, both suffered from C7 spinal cord injuries and bonded over their love of adventure and their thrill-seeking spirits. The result? A company that specializes in tandem skydiving, bungee jumping, wheelchair skateboarding, jet boating, and sit skiing.
So if you’ve got the adrenaline bug, get to it! Jump out of a plane, climb a mountain, go jet boating. Nothing is stopping you.
Other organizations that promise to thrill:
Disabled Travelers: Adventure Travel Information
Epic Enabled: Accessible African Safaris
One Couple’s Journey to Accessible Living
David Strawn Art Gallery (left), Loren (right)
Photos provided by Personal Mobility
At Savaria, we like to hear about our end users and how our products are making a difference in their day-to-day lives. But when we heard about Loren and Joy from Illinois, we couldn’t resist turning their story into a full blown article. This couple purchased not 1, not 2, but 3 Savaria mobility products.
Loren and Joy lived in a farmhouse in Jacksonville, Loren’s childhood home since the age of 6. Loren was an amputee and used a wheelchair. Sadly, he passed away recently at age 69. He lived in the farmhouse until he died.
Throughout his life, Loren owned lowered floor minivans, adapted full-size vans, and curved stairlifts. In 2005, the couple met with Savaria dealer, Personal Mobility, to purchase a residential lift. The first purchase was complete. A V-1504 Vertical Platform Lift was installed in their farm house. Chosen because of its durability and ease-of-use, the lift was a perfect fit for this couple. Loren was a woodworker, farmer, and overall a handy man, so he fashioned himself a rope handle for the platform gate that made it even easier still for him to enter the lift.
Loren and Joy’s farmhouse was originally part of the Jacob Strawn home place. This property was one of two built by the same couple. The other was donated to the Art Association of Jacksonville in 1915 and was converted to become the David Strawn Art Gallery. With ties to the gallery, Loren spearheaded the purchase of the second V-1504 for the building. The lift was customized with a bronze plexi glass enclosure and provides access to the main floor, elevated 9 feet off the ground.
The third product was purchased by Joy after Loren’s passing. Joy moved to a new home and though she is able-bodied, she recognizes the convenience of a home elevator and is planning for the future with her decision to install a Telecab.
All of these installations were performed by Savaria dealer, Personal Mobility. Owners Gerry and LuAnn Davis got their start in the industry when their daughter endured brain damage from an asthma attack that turned into cardiac arrest. When researching alternatives for an accessible van, the couple decided to open a mobility company to provide access for families such as themselves. Eleven years later, this family run business, in partnership with United Access, is considered to be one of the top mobility centers in Illinois.
We loved hearing Loren and Joy’s story and felt lucky to be a part of it. This wonderful couple faced physical barriers at times but they were quick to find solutions and adapt. They helped a beautiful art gallery become accessible and many will appreciate that in future years.
Hitting the Road with the Freys
Amy Frey in her new wheelchair accessible minivan
Planning a vacation or shopping for a flat screen TV can be taxing. The process can take a day, a weekend, a week; involve hours of research, countless conversations with friends, family, and sales persons; and conclude with the difficult final decision. Now what if you were buying a wheelchair accessible minivan? For some, this can take years!
Meet Malcolm and Lyne Frey. They began the hunt for an accessible van for their daughter, Amy, over two years ago. The Frey family is young and active and was in need of a vehicle that was comfortable, safe and reliable. We recently spoke with Lyne to learn more about their search for the perfect van.
The Freys originally went to an accessible vehicle dealership for a quote, but were discouraged by the prices. At that time, they were not aware of the different types of conversions, ramps, and add-ons, making it difficult to determine what their family needed. But once Amy got bigger, it became difficult for the Frey family to travel.
The Freys are a family of five; Malcolm and Lyne have 3 daughters, ages 11, 8, and 9 months. Amy, age 8, is a beautiful and happy girl. Malcolm and Lyne learned that Amy had microcephaly, cerebelar hypoplasia, and global development delays when she was just 8 months old. She functions at a 3-12 month-old level and began using a wheelchair shortly after her 4th birthday. Amy is now starting to walk and explore but is still dependent on her wheelchair for mobility and travel.
The Frey family’s day to day life is very busy. With 3 children, they are constantly on the go and morning and nightly rituals can take hours. Lyne says that things have changed drastically with a wheelchair user in the family. Stairs and curbs are viewed in a new way. Everything takes longer and the family takes up space wherever they go. Lyne does note, however, that she gets the good parking spaces!
The Freys revived their search this spring and bought a rear entry, short floor from Savaria. Having the accessible van has made a huge difference in the Frey’s daily living. Before the van, it was quite a process to get Amy in and out of the family vehicle. Now all they need to do is wheel Amy into the van and buckle up. Lynn and Malcolm actually argue over who gets to do it! With traveling so much easier now, the family plans on taking a trip to Niagara Falls this summer in their new van.
“Buying with Savaria was easy,” Lynn says. The family lives about an hour away from our Brampton offices so their sales representative, Ryan, drove the van down to Amy’s school so that the family could take Amy for a test drive.
When asked what advice she would give to other families searching for an accessible van, Lynn replied “get educated.” Learn about the types of vans, conversions, and ramps and think about which is the best choice for your family.
Design with an Accessible Twist
Bedroom designed by Cynthia at CMG Interiors for a child with sensory needs
Creative thinking is a must when designing for children with disabilities. It takes a good understanding of your child’s condition and what stimulates your child combined with a big dose of fun to make it a great kid’s space.
A child may have a physical need for access of the need for mental stimulations. Parents may be looking for ways to incorporate or hide medical equipment. Ginger Rodriquez, an interior designer and mom featured in the Washington Post believes that children with special needs spend more time in their rooms. Designers need to find new and interesting ways to divert a child’s attention away from his or her disability.
We spoke to Cynthia Meyers Griffin at CMG Interiors in Washington D.C. about the process of designing for a child with special needs. The first step is always getting to know the child. What are his or her needs? What will the room be used for – play, homework, rest? Does the child have a favorite color? It is also a good idea to talk to the parents to learn more about the child and what they are hoping to see in the room design. Cynthia also recommends doing some research on the child’s disability to better understand the challenges and needs and possibly design solutions that others have found effective. From there, the designer launches into the creative process to dream up the perfect room.
For children who are easily stimulated, she recommends calm colors, and just the opposite for children who need energizing. Some children may have issues with light, in which case diffusing or using artificial light is a great idea. Other solutions include spinning elements to help children who use movement to process information, rugs for diffusing sound or providing sensory stimulation, or high ceilings and open spaces for stimulating toys such as bouncy balls.
Ginger Rodriguez describes her design for her son in a WP February 2012 article (no longer available online). She installed hardwood floors so that her son could better use and move his IV pole. Lowered light switches and a control for the stereo system gave Sean control and independence in his room. She added a personal touch by painting the walls light blue with an image above the bed of a little boy flying an airplane and laughing.
For parents looking for Do-It-Yourself tips and tricks, Terri Sapienza outlines a number of ideas here, including hide-away bed rails and pocket doors to maximize space.
Designing a room for a child with disability can make a huge difference in his or her life. Not only can it be a rewarding experience for the designer, but the child is able to be self-sufficient and independent, something of utmost importance to children with disabilities. Having a room painted in your favorite color, with your favorite toys, room for your medical supplies, and easy access to light switches, the desk, the bed, etc. gives a feeling of “home.” And who doesn’t want that feeling for their child!